I suffer from Psoriatic Arthritis which is very demanding in all aspects of my life and this is my story on how I deal with it on a day to day basis.
I have been spending lots of time recently researching arthritis and pregnancy, there isnt loads of information out there and the most helpful thing i have found to date is forums and hearing other peoples story. This just confirms to me why I am 'blogging', if someone like me wants to know they are not on their own.
Tuesday, 26 January 2016
Apart from the tiredness the initial side effects have not been too bad, I felt a bit nauseous the day after the injection and walked around like a zombie. The worst of it was a horrendous headache the day following the injection. Of course, all of this could just be coincidence. It will take a few weeks to establish what is linked to being on the methotrexate.
I don't usually, but I actually read the patient information leaflet which came with my medication and was distraught to find out that I need to try and avoid too much intake of black tea. Now alcohol that doesn't really bother me, I don't really drink but my black tea Nooooooooo! Don't take my tea away, I need that to function. Therefore I have been on tea rations since last Tuesday. I decided two cups a day just wasn't enough so saw no option but to try green tea. I was sceptical, but had it delivered with my shopping this morning and promptly had my first cup. It was lovely, so I've had a few more. This I can live with!!!
I administered my second injection this morning, no problem, I'm quite proud of myself. I was worried if I'd be able to do it as my fingers are quite swollen and painful today as I am flaring, but I did it. Now all that's left is to hope it helps.
At the weekend my big boy turned 3, I do not know where those 3 years have gone, and how is my baby turning 6 months on Friday. Time just goes too quickly. My family keep me strong and it's for them that I do everything in my power to try and be as well as I can because I do not want them to miss out on things because of me.
Wondering now what the week ahead holds???
Tuesday, 19 January 2016
Next week, I haven't got to go to the hospital to be supervised doing it, I will just be doing it myself at home and I'm actually feeling OK about it.
I'm still going to bed nervous tonight, the dreaded side effects, all I can hear myself saying is ' don't be sick, don't be sick, don't be sick'. Fingers crossed I will wake up in the morning side effect free, and who knows this journey may even take me to one day waking up bright eyed and bushy tailed, symptom free! So I may be dreaming but we can all hope.
I left the hospital today with my support I went in with (mummy and kids - hubby was working), paperwork regarding the medication or as it is also referred to subcutaneous chemotherapy treatment (how scary does that sound? ), 4 weeks worth of injections and an oversized sharps box. I really am starting to look like a pharmacy with my collection! My 3 year old son was very helpful and carried the sharps box, my poor kids, hospitals and drs are like their second home. On the positive, hopefully they shouldn't have any fears of hospitals!
I will update my journey as it goes, thanks for reading .
So, it's taken longer than expected to get to this stage. But today is the day, today I start on methotrexate again. I have taken the decision to administer it weekly via injection rather than take the tablets as it should lessen the side effects on my liver and the sickness!
I haven't felt a stranger combination of feelings that I do today in a long time. I am surprisingly so excited to be starting this as I am in so much pain and just hoping that it will help. But I am so nervous too, never been a fan of needles, but also worried about what side effects can occur. Will I be chucking my guts up tomorrow??? 😖😖😖😖
Watch this space...
Thursday, 19 November 2015
Tuesday, 13 May 2014
Sorry yet again for the absence of any blogging. Still can't believe how time consuming a little one can be. More so now that he is into everything and starting to walk. I could do with some extra pairs of eyes and hands.
Still enjoying every single minute of this amazing journey that is motherhood. Very hard work but so worth it, it's amazing see this little baby grow, he's now a little boy with his own cheeky personality. He will never know just how much he has changed my life and how he has helped me so much with dealing with and managing my arthritis.
I'm feeling sorry for myself today, the pain is the worst it's been for a very long time. I could cry, but instead I've planted a smile across my face for my little man and just got on with it. He's not going to miss out on things because of this horrible disease too.
Mummy and baby 1 - arthritis 0
Just a mention, late for this year but to help this lady, Heather raise awareness of mesothelioma please check out the following link when you get chance Mesothelioma.com/heather/lungleavinday
Thursday, 16 January 2014
So this time last year I had an oversized belly, swollen ankles, larger than normal boobs, all in all, I was pretty fed up and even though I had just less than 2 weeks to go until my due date it felt like I was well overdue. I was so eager to meet my little wriggler that hadn't seemed to have stopped moving for the past 9 months. After so long planning for the pregnancy because of my medication it was hard to believe the journey had nearly reached its conclusion. He eventually arrived on 23rd January, words can not describe how amazing it felt to be a mum.
So this time next week I will be celebrating my little boys first birthday, it's hard to believe he will be one already. It's lovely seeing him grow each day and I feel so blessed to have our little miracle, but it makes me sad too, he's not a baby anymore. I feel like the firsts are running out though, even when I know I have years of him doing new things. The past year has just flown by, I can't believe how quickly it goes. One of his friends (from our baby group) was one today and had a party, it only seems like a few weeks ago that I met my baby group and their little ones. It's lovely to see them all developing though and their individual little personalities coming out.
I have had so much fun on this incredible journey so far, and although my arthritis still sucks, it makes it much easier to deal with. I have no choice but to keep going for my little man. When I'm playing games with him even though I'm having to push through the pain to do it, his little smile or giggle just makes all the pain worth it.
Don't get me wrong I still have my worse days when I could just curl up in a ball and cry. But, I get myself up, usually with help from my husband, plant a smile on my face and just do my best. Today was one of those days and with the damp, cold weather these days occur more often. I still hope that a cure could be just around the corner, I want to be able to play football with my little boy when he is a little older, and whilst I stretch myself all the time that may be a stretch too far. Chasing after my crawling monster can be a challenge on days like today.
Thanks for reading and sorry for the lack of blog posts in the last year, life is very busy with children. But like with everything I will continue to try harder.